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Archives for: April 17th, 2018

Mackenzie’s Mission

Written by Lisa Sencen on April 17, 2018

In this guest blog post submitted by Mackenzie Boedicker and her mother, Deb,  we share the story of one woman’s mission to alleviate the struggles for those who live with amyloidosis. Mackenzie was diagnosed in 2017 and is doing well as a full-time research assistance and founder of a… Read More

Help Tara Pass School Bus Legislation

Written by Lisa Sencen on December 18, 2015
A great supporter of NORD, Tara Notrica, sent some staff members at NORD the following letter with the determination to get an important piece of legislation passed. We’re happy to share her letter with the community in an effort to spread the message and get this legislation… Read More

Illinois Man Uses His Myelofibrosis Story to Help Others

Written by on July 16, 2014

The diagnosis of primary myelofibrosis (MF), one of three main myeloproliferative neoplasms (MPNs), came as a huge surprise for Bill Erickson in May 2012. According to the MPN Research Foundation, patients with MF have scar tissue buildup in their bone marrow, which prevents normal blood cells from being produced. Since blood cell… Read More