student leaders Archives - NORD (National Organization for Rare Disorders)

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Archives for: January 18th, 2018

Early Diagnosis: Perspectives from NORD Student Chapter Leader, Harjot Randhawa

Written by Christina Jensen on January 18, 2018

During the 2017 Rare Diseases & Orphan Products Breakthrough Summit over 700 individuals from the rare disease community gathered to advance the dialogue in rare diseases. NORD was pleased to have a large group of student chapter leaders involved with the event in 2017. One leader,… Read More

NORD Announces Honorees for the 2017 Rare Impact Awards

Written by Jennifer Huron on March 15, 2017

Washington, D.C., March 15, 2017—The National Organization for Rare Disorders (NORD) today announced the people, organizations, and innovators who will be honored at the 2017 Rare Impact Awards on May 18 in Washington, D.C.

The Rare Impact Awards is a… Read More

Tweets From NORD

#OrphanDrugs remain less than 10% of the overall medicine budget in the United States according to the recently rel… https://t.co/XQbjLNURXg2 days ago
#NORD Member, @CureSMA, is hosting a #CME session & NORD's Vice President of Educational Initiatives will be a Keyn… https://t.co/1iwS1ezT7c2 days ago
This week, #NORD Director of Research Programs, Vanessa Boulanger, is attending @ISOQOL 25th Annual Conference in D… https://t.co/QEeVhzQ1Gx2 days ago
NORD is seeking proposals from accredited CME providers to collaborate in providing CME events and online resources… https://t.co/NlxsTkSfQK2 days ago

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Copyright ©2018 NORD - National Organization for Rare Disorders, Inc. All rights reserved. NORD is a registered 501(c)(3) charity organization. Please note that NORD provides this information for the benefit of the rare disease community. NORD is not a medical provider or health care facility and thus can neither diagnose any disease or disorder nor endorse or recommend any specific medical treatments. Patients must rely on the personal and individualized medical advice of their qualified health care professionals before seeking any information related to their particular diagnosis, cure or treatment of a condition or disorder.