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Archives for: May 29th, 2013

High-School Students Raise Awareness

Written by admin on May 29, 2013

Today, members of the NORD staff had the opportunity to meet a group of high-school advocates who are already making a difference to help raise awareness for rare diseases. (more…)

The Story Behind the Rare Disease Day School Curriculum

Written by on November 12, 2012

Two weeks ago, as my flight landed in Boston, I stepped outside of the plane with a long tube in my arm, inside of which was a very special poster. It was the poster about a project I had completed with NORD. I was about to present this poster at… Read More