Scroll
To Top

Archives for: October 13th, 2021

The Strength of Families

Written by Valaree DonFrancesco on October 13, 2021

On the show today, Aprill Lane is a mother of five and rare disease and infertility advocate — and you do not want to mess with her. She and her husband, Brian, tried to have a baby on their own for 4½ years until they were diagnosed with unexplained infertility. Endless… Read More

NORD’s Rare Disease Advisory Councils

Written by Valaree DonFrancesco on June 30, 2021

On the show today, it’s all about Rare Disease Advisory Councils – or RDACs, for short. RDACs provide a platform for the rare community to have a stronger voice in state government. Joining us is NORD Director of Policy Heidi Ross, your one-stop human shop to understanding what these councils… Read More