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Archives for: September 8th, 2015

The Sturge-Weber Foundation

Written by Christina Jensen on September 8, 2015

Established in 1987, the Sturge-Weber Foundation is dedicated to acting as a clearinghouse for information on all aspects of port wine stain conditions and Sturge-Weber syndrome, and offering support to all interested parties. The group seeks to educate the medical community, government agencies, and the general public; promote the funding… Read More

2015 Portraits of Courage Honoree: Emily Argersinger

Written by Jennifer Huron on April 27, 2015

 

At just 13 years old, Emily Argersinger decided to climb the highest peak in the northeast, Mount Washington.  She did this to raise awareness of Sturge-Weber Syndrome – for herself, and for every other patient with this rare disease.

Mt. Washington is famous for its dangerously erratic weather.   Emily had never… Read More