Head of the Herd: Charlene Son Rigby, President and Cofounder, STXBP1 Foundation
Written by Laura Mullen on November 13, 2020
At the Head of the Herd is… Charlene Son Rigby, President and Cofounder, STXBP1 Foundation
Charlene advocates for those affected by… STXBP1 encephalopathy
Charlene is located in… San Francisco, CA
Charlene most frequently checks her… Twitter account @charleneson
How Charlene got here… My daughter, Juno, was diagnosed with STXBP1 encephalopathy in 2016 after a… Read More