Head of the Herd: Charlene Son Rigby, President and Cofounder, STXBP1 Foundation

Written by Valaree DonFrancesco on November 13, 2020

At the Head of the Herd is… Charlene Son Rigby, President and Cofounder, STXBP1 Foundation

Charlene advocates for those affected by… STXBP1 encephalopathy

Charlene is located in… San Francisco, CA

Charlene most frequently checks her… Twitter account @charleneson

How Charlene got here…  My daughter, Juno, was diagnosed with STXBP1 encephalopathy in 2016 after a… Read More