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Archives for: January 27th, 2022

Rare Disease Day: Elizabeth’s Story

Written by Maia Craig on January 27, 2022
This is a photo of Elizabeth

Leading up to #RareDiseaseDay on February 28, NORD is sharing stories from patients and caregivers impacted by rare disease. This week, we are sharing Elizabeth’s journey with SUOX mutation/late onset isolated sulfite oxidase deficiency. If you want to share your rare story in honor… Read More