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Archives for: April 28th, 2014

Are Civility and Mature Behavior Really Too Much to Expect?

Written by admin on April 28, 2014

Today, along with many others, I was horrified to learn that celebrities, including Shaquille O’Neal, were mocking a man living with ectodermal dysplasia on their social media pages. Read the story(more…)

#raredisease myths during the #LivingRareForum. Check out these 6 myths about #rarediseases that wi… https://t.co/AilZ3rZ2lP
  • Coming up this Monday, April 22 we're hosting a conversation w/ @TexasChildrens on relationships in #rarediseases.… https://t.co/HHyM3ewFfk
  • RT @Purrfectly_Rare: There=no greater honor than 2 speak 4 1st time @ #LivingRareForum bc Im just like those attending, some1 impacted by #…