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Archives for: April 22nd, 2019

Tweetchat on Rare Relationships, #lovingrarechat

Written by Lisa Sencen on April 22, 2019

 

Tweetchat Coordinates

When: Monday, April 22, 1:00p.m. – 2:00p.m. ET
Tweetchat Hashtag: #lovingrarechat
Tweetchat Moderator from NORD: @RareDiseases
Tweetchat Moderator from Texas Children’s: @TexasChildrens

About

As a part of NORD’s mission to improve the lives of the 25-30 million Americans impacted by rare diseases, we are honored to… Read More

Tweetchat on Pediatric Cancers, #KidsCancerChat

Written by Lisa Sencen on September 21, 2016

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September is Pediatric Cancer Awareness Month. Did you know that all pediatric cancers are rare?

Tweetchat Coordinates
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NORD Members Share Great Resources for ER Visits During #RareERChat

Written by Mary Dunkle on May 27, 2016

Emergency room visits are a fact of life for many people with rare diseases. And, when the patient is a child, these experiences can be especially stressful for the entire family.

For that reason, NORD was delighted to host a tweetchat with Texas Children’s Hospital –… Read More

May 26, 2016
1:00 – 2:00 p.m. EDT

#RareERChatNORD

A trip to the emergency room with a rare disorder can present challenges. For one,… Read More