Downloadable Hurricane Harvey Emergency Relief Resources
Written by Christina Jensen on August 31, 2017
Hurricane Harvey has left thousands rid of their belongings and forced out of their homes. For individuals living with a rare disease, the impact of such natural disasters can be even more detrimental. Together, NORD staff worked with our Texas Rare Action Network State Ambassador, Debbie Skolaski to create… Read More
NORD Publishes Report on Spontaneous Intracranial Hypotension
Written by Jennifer Huron on January 27, 2017
New Resource Aims to Provide Information for Patients, Families and the Public
Washington, D.C., January 27, 2017—As part of its ongoing series to promote awareness and education of rare diseases, the National Organization for Rare Disorders (NORD) has published a report on Spontaneous Intracranial Hypotension (SIH). This… Read More