Texas Archives - NORD (National Organization for Rare Disorders)

Living Rare, Living Stronger full agenda with speakers now available

Written by Lisa Sencen on April 9, 2019

The 2019 Living Rare, Living Stronger NORD Patient and Family Forum promises to be an unforgettable weekend for patients, families, medical professionals and students. Download the agenda now and register by April 26 to take advantage of… Read More

Downloadable Hurricane Harvey Emergency Relief Resources

Written by Lisa Sencen on August 31, 2017

Hurricane Harvey has left thousands rid of their belongings and forced out of their homes. For individuals living with a rare disease, the impact of such natural disasters can be even more detrimental. Together, NORD staff worked with our Texas Rare Action Network State Ambassador, Debbie Skolaski to create… Read More

NORD Publishes Report on Spontaneous Intracranial Hypotension

Written by Jennifer Huron on January 27, 2017

New Resource Aims to Provide Information for Patients, Families and the Public

Washington, D.C., January 27, 2017—As part of its ongoing series to promote awareness and education of rare diseases, the National Organization for Rare Disorders (NORD) has published a report on Spontaneous Intracranial Hypotension (SIH). This… Read More

Archives for: April 9th, 2019