Written by Lisa Sencen on September 12, 2016
This summer marked our one-year anniversary of hosting the Rare Disease of the Day campaign on our Facebook page and website. It has been a productive campaign, sharing information on over 200 rare diseases, in line… Read More
Written by Lisa Sencen on July 30, 2016
Turner Syndrome Society of U.S. is sponsoring Boston International Turner Syndrome Summit. This program is for girls ages 12-19 with Turner syndrome and brings them together for fun, enriching experiences that foster independence and community.
The Boston International Turner Syndrome Summit is an eight-day summer program for young women with… Read More