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Archives for: February 28th, 2018

NORD Rare Disease Day Tweetchat

Written by Christina Jensen on February 28, 2018
In celebration of Rare Disease Day 2018, NORD will moderate a tweetchat on the important topic “What To Do If You or Your Child Receive a Rare Disease Diagnosis” with co-hosts Boston Children’s Hospital and The Mighty.
Join us! The tweetchat is an opportunity for patients, experts, doctors, the rare disease community… Read More

Tweetchat on Genetic Testing, #genetest101

Written by Christina Jensen on July 13, 2017

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When: Thursday, July 13, 2:00 p.m. – 3:00 p.m. ET
Tweetchat Hashtag:… Read More

NORD & ABC News Rare Disease Day Tweetchat

Written by Christina Jensen on February 28, 2017

In celebration of Rare Disease Day®, NORD will co-host a tweetchat on the topic of rare diseases with Dr. Richard Besser, Chief of the ABC News Medical/Health Unit. The tweetchat will take place on Tuesday, Feb. 28, 2017 at 1:00 p.m. EST.

This is the fourth annual tweetchat that ABC… Read More

Tweetchat on Pediatric Cancers, #KidsCancerChat

Written by Christina Jensen on September 21, 2016

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September is Pediatric Cancer Awareness Month. Did you know that all pediatric cancers are rare?

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