Written by Jennifer Huron on June 28, 2016
As part of its ongoing series to promote physician awareness of rare diseases, the National Organization for Rare Disorders (NORD) has published a Physician Guide to Mitochondrial Myopathies, available free online to medical professionals around the world.
The NORD Physician Guide was written by two widely acknowledged… Read More
Written by Mary Dunkle on May 27, 2016
Emergency room visits are a fact of life for many people with rare diseases. And, when the patient is a child, these experiences can be especially stressful for the entire family.
For that reason, NORD was delighted to host a tweetchat with Texas Children’s Hospital –… Read More
Written by Mary Dunkle on March 24, 2014
NORD recently hosted a Capitol Hill briefing on the topic “Rare Diseases in a Changing Healthcare Landscape”. Keeping our elected officials informed… Read More
