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Archives for: March 19th, 2019

NORD announces expansion of three Patient Assistance Programs

Written by Valaree DonFrancesco on March 19, 2019

In recent years, NORD has provided Patient Assistance Programs to assist the Chronic Granulomatous Disease (CGD), Cystinosis and Urea Cycle Disorders (UCD) communities. As of Monday, March 18, we are delighted to announce an expansion to the support we are able to provide to these communities. See… Read More

Dr. Stephen Cederbaum: 2016 Rare Impact Award Honoree

Written by Lisa Sencen on May 5, 2016

A medical geneticist and expert on inborn errors of metabolism, Stephen Cederbaum, MD, has been affiliated for many years with the University of California, Los Angeles, as a professor, medical researcher and clinician. He has conducted pioneering research, published widely acclaimed papers and advanced understanding of urea cycle… Read More