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Archives for: February 27th, 2016

Utah Rare Disease Day State House Event

Written by Christina Jensen on February 27, 2016

Rare disease advocates have joined with the National Organization for Rare Disorders (NORD), the national sponsor of Rare Disease Day in the US, to organize this special event for legislators, legislative staff, the public and the media.

The purpose of this event is to raise awareness at the state level for… Read More