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Archives for: April 21st, 2020

NORD’s Director of Research Programs Publishes Article on Rare Disease Research in the 2020 Rare Neurological Disease Special Report

Written by Laura Mullen on April 21, 2020

The National Organization for Rare Disorders (NORD®) is excited to spotlight an article written by NORD’s Director of Research, Vanessa Boulanger, MSc, published in the 2020 Rare Neurological Disease Special Report. The feature, “Now Is The Time For Research On Rare Diseases,” details the importance of natural… Read More

Fanconi Anemia Research Fund and NORD Launch Natural History Study of Fanconi Anemia

Written by Laura Mullen on April 3, 2020

This week, the Fanconi Anemia Research Fund (FARF) and the National Organization for Rare Disorders (NORD) launched the largest-ever study to research Fanconi anemia (FA), a patient-driven natural history registry that will result in a wide variety of clinical findings. Fanconi anemia currently has no cure.

The new study, “An observational… Read More

Current Funding Opportunity: NORD Research Grants for Rare Diseases

Written by Lisa Sencen on February 8, 2018

The National Organization for Rare Disorders (NORD), the leading independent, nonprofit organization committed to the identification, treatment, and cure of rare disorders, has announced the availability of three research grants as part of its Rare Disease Research Grant Program. NORD encourages all U.S. and international researchers interested in… Read More

NORD Announces Three New Hires to Lead Research, Education and Business Development Programs

Written by Jennifer Huron on October 10, 2017

Danbury, CT, October 10, 2017The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization dedicated to helping the 30 million Americans with rare diseases, announces the appointment of three new hires: Vanessa Boulanger, Director of Research Programs; Sika Dunyoh, Director of Education Programs; and Alexa Moore, Vice President… Read More