To Top

Archives for: November 28th, 2017

Rare Disease Advocates Host a Save the Orphan Drug Tax Credit Rally

Written by Jennifer Huron on November 28, 2017

Patients speak out as Congress moves forward with a tax bill that would negatively impact individuals with rare diseases

Washington, D.C., November 28, 2017 –  Today, the National Organization for Rare Disorders (NORD) is hosting a Save the Orphan Drug Tax Credit Rally for the rare disease community in… Read More

Musical Act Announced for Rare Impact Awards on May 18th

Written by Jennifer Huron on March 2, 2017

Washington, D.C., March 2, 2017—On Thursday, May 18, nationally touring musical artist Gaelynn Lea will perform at the Rare Impact Awards ceremony in Washington, D.C.  In 2016, Gaelynn Lea was named the winner of NPR Music’s second-ever Tiny Desk Contest. Her music video entry rose to the top of over… Read More