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Archives for: September 26th, 2017

Protecting Your Healthcare Coverage

Written by Lisa Sencen on September 26, 2017

The new administration and Congress are re-examining the United States health insurance system with the goal of repealing the Affordable Care Act, and replacing it with a new system.

Before the Affordable Care Act was enacted in 2010, rare disease patients faced discriminatory insurance practices due to their pre-existing condition. Patients… Read More

NORD Publishes New Report on Sitosterolemia

Written by Lisa Sencen on August 28, 2017

Washington, D.C., August 28, 2017—As part of its ongoing series to promote awareness and education regarding rare diseases, the National Organization for Rare Disorders (NORD) has published a report on Sitosterolemia. This new resource is… Read More