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Archives for: October 16th, 2017

2017 Rare Diseases and Orphan Products Breakthrough Summit

Written by Christina Jensen on October 16, 2017

RareSummit_Logo_RGB_smallNORD’s Rare Diseases and Orphan Products Breakthrough Summit is the largest and most meaningful multi-stakeholder event of its kind – historically featuring over 20 speakers from the FDA, participation from over 80 patient organizations and the Pharma/Biotech industry’s foremost experts in orphan product innovation,… Read More

Washington State House Event

Written by Christina Jensen on February 29, 2016

Rare disease advocates have joined with the National Organization for Rare Disorders (NORD), the national sponsor of Rare Disease Day in the US, to organize this special event for legislators, legislative staff, the public and the media.

The purpose of this event is to raise awareness at the state level for… Read More