Written by Christina Jensen on August 22, 2018
Written by Christina Jensen on May 1, 2018
Have you heard of a patient or natural history registry but have no idea what it was? Interested in starting a registry for your patient population but not sure where to start?
We will cover these topics and more in an educational webinar on May 1. NORD’s Research Programs Manager, Suzanne… Read More
Free Educational Webinar Policy 101: Role of Government in Rare Disease Policy and Tips to Advocate for You and Your Loved One
Written by Christina Jensen on February 20, 2018