The Undiagnosed: Orphans of the Rare Disease Community

Written by Paul Melmeyer on October 5, 2015

While the approximately 7,000 known rare diseases run the full spectrum of symptoms and experience, rare disease patients encounter many common obstacles. Rare patients face incredible difficulty finding safe and effective treatments, and even if such treatments exist, a multitude of reimbursement difficulties await.  Rare disease patients often wait years… Read More