Written by Lisa Sencen on October 26, 2017
View the full documentary.
Danbury, C.T., October 26, 2017 – Imagine never being allowed to feel the sun on your skin. For 11-year-old Peyton, who is allergic to sunlight, that is a reality. In a new documentary released today, see how the National Organization for Rare Disorders… Read More
Written by Jennifer Huron on February 24, 2017
Washington, D.C.—February 24, 2017—The National Organization for Rare Disorders (NORD), the leading independent, nonprofit organization committed to the identification, treatment, and cure of rare disorders, has awarded seven new research grants to fund rare disease research.
Research grants awarded for 2016 Requests for Proposals include:
For the study of Alveolar Capillary… Read More