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Archives for: March 29th, 2018

NORD Reaction to Recently-Enacted Government Spending Bill

Written by Christina Jensen on March 29, 2018

After months of debate, Congress passed an omnibus spending bill last week to fund the government through September 30, 2018. Within this legislation, there are both exciting investments in critical programs for the rare disease community as well as disappointing policy omissions from the final package.

For example, we had greatly… Read More

$1.1 Billion in Federal Funding to Fight the Zika Virus

Written by Jennifer Huron on September 29, 2016

white-houseWashington, D.C., September 29, 2016 – The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, released the following statement from President and CEO Peter L. Saltonstall following President Obama’s… Read More

July 13 Day of Action: Last Chance for Zika Funding

Written by Jennifer Huron on July 13, 2016

Time is running out – today may be our last chance before September for anything to happen on the critical Zika package.  This Friday, Senators will depart D.C. for their 7-week summer recess.  This is problematic because July and August in the U.S. are the worst months for mosquito and… Read More