“Inspiring and Informative. Brought me to the realization that though I may feel my ‘disease’ is the only one – there are many who have their own struggles.”

–Research Nurse III, Cincinnati Children’s Hospital Medical Center

“Incredibly valuable meeting to connect stakeholders, share information and provide inspiration and motivation.”

–Sanofi-Genzyme

“The NORD Summit was the singular opportunity that I have had to interact and network with others from patient orgs dealing with rare diseases. I learned as much in the networking breaks as I learned in the sessions. I leave with new knowledge I don’t think I could have gained anywhere else.”

–Director of Research, Hemophilia Federation of America

Our poster session will be bigger than ever, with 80 presenters sharing abstracts on the theme of “Life-Transforming Treatments.” Last year’s poster session was insightful and inspiring, and this year’s will feature even more information.

NORD Rare Summit attendees will have plenty of opportunities to make connections. 14 Lunch & Learn sessions will be available during the two-day event for attendees to take advantage of meaningful round table discussions in a casual setting. In addition, attendees will have the chance to use our brand-new networking app which will allow them to set up 1:1 meetings, navigate the conference, and more! More information coming soon.

NORD Rare Summit registrants are invited to attend “Cocktails and Conversation with Children’s National Rare Disease Institute” on Tuesday, October 16 at 6 pm. Marshall Summar, MD, and members of the Children’s National Rare Disease Institute are looking forward to welcoming all and celebrating the Summit and the work going on in the Institute.

The registration link for the reception is: http://childrensnational.org/NORD2018