Sep. 12, 2018
TOPIC: Featured News, Medical, Patients & Members, Research, Advocacy, Industry, Events, Get Involved
Posted by Lisa Sencen
1. Raves About the Rare Summit “Inspiring and Informative. Brought me to the realization that though I may feel my ‘disease’ is the only one – there are many who have their own struggles.” –Research Nurse III, Cincinnati Children’s Hospital Medical Center “Incredibly valuable meeting to connect stakeholders, share information and provide inspiration and motivation.” –Sanofi-Genzyme “The NORD Summit was the singular opportunity that I have had to interact and network with others from patient orgs dealing with rare diseases. I learned as much in the networking breaks as I learned in the sessions. I leave with new knowledge I don’t think I could have gained anywhere else.” –Director of Research, Hemophilia Federation of America |
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2. Posters! Posters! Posters! Our poster session will be bigger than ever, with 80 presenters sharing abstracts on the theme of “Life-Transforming Treatments.” Last year’s poster session was insightful and inspiring, and this year’s will feature even more information. |
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3. Network and Make Connections NORD Rare Summit attendees will have plenty of opportunities to make connections. 14 Lunch & Learn sessions will be available during the two-day event for attendees to take advantage of meaningful round table discussions in a casual setting. In addition, attendees will have the chance to use our brand-new networking app which will allow them to set up 1:1 meetings, navigate the conference, and more! More information coming soon. |
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| NORD Rare Summit registrants are invited to attend “Cocktails and Conversation with Children’s National Rare Disease Institute” on Tuesday, October 16 at 6 pm. Marshall Summar, MD, and members of the Children’s National Rare Disease Institute are looking forward to welcoming all and celebrating the Summit and the work going on in the Institute. |
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Tags: NORD Summit, Hemophilia Federation of America, Rare Diseases and Orphan Products Breakthrough Summit, Sanofi Genzyme, Poster Abstracts, NORD Rare Summit, Networking, Cincinnati Children's Hospital Medical Center