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Feb. 29, 2016

TOPIC: Advocacy, Events, Featured News, Get Involved, Patient Stories, Patients & Members

Today is Rare Disease Day®

Posted by Jennifer Huron

rdd-social-profileOn this day, join the 30 million Americans who are making the voice of rare diseases heard. Your participation on Rare Disease Day means more awareness and hope for 1 in 10 people and families across the country, and others around the world.

Social Media – We’re Trending!

Together, let’s keep trending by using the official, global hashtag, #RareDiseaseDay, in all of your social media posts. Here are some suggested posts.

Your Click Equals $1 Donation to Research

Simply click and Lundbeck US donates $1, up to $10,000, to rare disease research.  The campaign ends today!

Handprints Across America®

Submit to the 2016 Handprints Across America gallery! This gallery shows individuals and groups from all across the country showing their support. It is also a great way to share your story with a large audience.

State House Events

Rare disease advocates are joining together in 36 states for State House Events across the country to advocate, educate elected officials, and make the voice of rare diseases heard.

Attend Events

There are many events to attend around the country and virtually  on Rare Disease Day.

Downloads and Handouts

Print out Rare Disease Day resources to share with your family, friends, doctors, and community today, and around the year.

Rare Disease Day® is sponsored and hosted in the U.S. by NORD®. NORD is a member of the National Alliances, a group of umbrella organizations that work with Rare Disease Day founder, EURORDIS, to organize and present Rare Disease Day around the world.  Visit the U.S. site here and the global site here.

Thank you to our 2016 sponsors!

2 Responses to “Today is Rare Disease Day®”

  1. Renee Abrams says:

    Wondering where we leave suggestions for RAre Disease of the Day:
    Klippel Feil Syndrome.

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