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Jun. 7, 2016

TOPIC: Advocacy, Get Involved

Today, Tell Congress We Need #CuresNow

Posted by Christina Jensen
HDR_PolicyAlert_2
Today, June 7, join rare disease advocates around the country and tell your Senators to support the Senate Cures Legislation. This month is the last chance for Senate Cures to pass before the Senate is out of session until after the November election.
Senate Cures (also called the Senate Innovation Act for Healthier Americans) is the companion legislation to the 21st Century Cures Act, which passed in the House last year.
This vital package includes billions of dollars to help the rare disease community, including new funding for critical research at the NIH and to accelerate drug approval at the FDA, and several other provisions.
NORD is proud to work with other advocates across the country to unite and make sure the Senate gets our message loud and clear!

Take Action!

Time is running out and we need your help to move the Senate Cures Legislation! Join advocates from across the country and call the Senate TODAY!
  • Use social media to add your voice!
  • Call your members of Congress to show your support for the Senate Cures Legislation
  • Email your members of Congress and urge them to support this piece of legislation

Background: What is 21st Century Cures?

NORD worked with its Member Organizations and other patient advocates to help ensure the 21st Century Cures Act was passed in the House last year. As background information, here is some of the work that we accomplished together:
  • Sent a letter to the House Energy & Commerce Commitee from NORD and Member Organizations
  • Comments to the House Energy & Commerce Committee
  • Urged Advocates to call Congresspeople to tell them to support 21st Century Cures Act
Alone we are rare. Together we are strong®.

2 Responses to “Today, Tell Congress We Need #CuresNow”

  1. Marilyn Binkley says:

    I just saw a post on Facebook from EVERYDAYLIFE wanting you to post your picture to show your support to your senator concerning #curesnow. Is this still active in the Senate or is this some kind of scam? The date today is 9-14-2016.

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