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May. 4, 2017

TOPIC: Advocacy

Urgent Advocacy Alert – Please Call Congress Now Before This Afternoon’s AHCA Vote

Posted by Jennifer Huron

Congress is scheduled to vote this afternoon – we need your help!

Today, the House is scheduled to vote on the American Health Care Act (AHCA). If the bill passes, the consequences could be devastating for people with rare diseases, including fewer protections for preexisting conditions and the return of annual and lifetime limits.

Please take a minute to phone your legislators and ask them to vote NO! (click)

Now may be our only chance to fight this bill, which discriminates against the 1 in 10 Americans with rare diseases.  If the bill passes in the House, there is no guarantee what will happen in the Senate.

Every phone call counts.  If you have already called, please call again and make your voice heard once more.

What does the revised AHCA mean for people with rare diseases?

NORD released several statements this week outlining its opposition to the latest version of the AHCA (read more).


Sign up to receive NORD policy updates via email and view other recent policy statements here.

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