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Burlington Marriott

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1 Burlington Mall Road
Burlington, MA 01803 United States

October 2016

HHT National Patient and Family Conference

October 28, 2016 - October 30, 2016
Burlington Marriott, 1 Burlington Mall Road
Burlington, MA 01803 United States
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Hereditary Hemorrhagic Telangiectasia (HHT), also known as Osler-Weber-Rendu Syndrome, is a genetic blood vessel disorder that affects approximately 1.4 million worldwide and yet remains largely undiagnosed. The familial and societal impact of HHT on a national and global scale is immeasurable. For this reason, it is imperative that HHT patients learn as much as they can about this multi-organ disease so they can advocate for their health care. The National HHT Patient & Family Conference, which takes place every two years,…

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