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Hawaii State House

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415 S Beretania St.
Honolulu, 96813

February 2016

Hawaii Rare Disease Day State House Event

February 29, 2016 @ 10:30 am - 12:00 pm
Hawaii State House, 415 S Beretania St.
Honolulu, 96813
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Rare disease advocates have joined with the National Organization for Rare Disorders (NORD), the national sponsor of Rare Disease Day in the US, to organize this special event for legislators, legislative staff, the public and the media. The purpose of this event is to raise awareness at the state level for the 1 in 10 individuals living with a rare disease and the challenges they face. Many important decisions related to rare diseases are made at the state level, and…

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