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Prague , Czech Republic

February 2016

2016 Rare Disease Day-HCU and Methylation Defects Patient & Expert Meet

February 29, 2016 @ 8:00 am - 5:00 pm
Unnamed Venue Prague , Czech Republic + Google Map

HCU and Methylation Defects Patient & Expert Meet planned for World Rare Disease Day, 2016. The Meet is being convened by HCU Network Australia and the European Network and Registry for Homocystinurias and Methylation Defects (E-HOD).  The Recordati Rare Disease Foundation are generous supporters of the event. The aim of the meet is to strengthen the interaction between key stakeholders, namely the patients, clinicians and researchers and to promote optimal health for patients with these disorders.  Our hope is that…

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