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February 2021

The Orphan Disease Center 10th Anniversary Virtual Symposium: A New Era of Rare Disease Diagnostics and Therapeutics

February 24 @ 10:00 am - February 25 @ 3:00 pm

Penn’s Orphan Disease Center (ODC) is the first of its kind, a program dedicated to identifying promising therapies for oft-overlooked disorders and providing access to those therapies for patients of all populations. Led by world-renowned gene therapy pioneer Jim Wilson, the ODC has a track record of accelerating progress across a number of arenas, including infectious diseases, blood disorders, metabolic diseases, and neurologic disorders like Rett syndrome, CDKL5 deficiency disorder, and Duchenne muscular dystrophy. Join us as we take a…

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BioNews #WhatMakesMeRare Virtual Event

February 27 @ 2:00 pm - 3:30 pm

To mark Rare Disease Month, BioNews Services invites those in the rare disease community — whether you are a patient, caregiver, healthcare worker, researcher, or anyone else touched by a rare disease — to participate in our first live virtual event, focused on open and honest conversation about mental health, resilience, and self-care. Inspired by feedback from people in the rare disease community, this is an opportunity to share your thoughts and experiences and shape future virtual events. The event…

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Free To Be You

February 28 @ 3:00 pm - 5:00 pm

In recognition of Rare Disease Day, Feb 28 Permission to Fly’s Butterfly Circle presents "Free to Be You", an open mic style Conversation that encourages you to express yourself through song, dance, spoken word, poetry, and, creative movement. In this Safe space, we are talking about ✨New Beginnings✨ What do new beginnings, transformation, and change mean to you in 2021 and how can you show it through your art? Whether you’re performing or just want some girl talk, go to…

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March 2021

64th NAF Annual Ataxia Conference

March 10 - March 13

National Ataxia Foundation is excited to host the 2021 conference 100% online, broadening the event’s reach and making it accessible to our global community. Whether this is your first time attending AAC or your 64th, we welcome you to enjoy the informative sessions and engaging networking opportunities. See old friends, make new friends, and hear from the leading Ataxia experts. Researchers and clinicians will unmask more about Ataxia and the progress being made toward new therapies.

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