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Rhode Island Rare Disease Advisory Council Coalition Meeting

Tagged in: RDAC
Zoom
Virtual Event Virtual Event

EMPOWER CHANGE Your Voice Matters in Building a Rare Disease Advisory Council Join the coalition of rare disease patients, experts, and advocates like you to push lawmakers to create a Rare Disease Advisory Council (RDAC) in Rhode Island. Meet other rare disease community members in your state. Discuss the unique needs and challenges that the …

Vermont Rare Disease Advisory Council Coalition Meeting

Tagged in: RDAC
Zoom
Virtual Event Virtual Event

EMPOWER CHANGE Your Voice Matters in Building a Rare Disease Advisory Council Join the coalition of rare disease patients, experts, and advocates like you to push lawmakers to create a Rare Disease Advisory Council (RDAC) in Vermont. Meet other rare disease community members in your state. Discuss the unique needs and challenges that the rare …

Vermont Rare Disease Advisory Council Coalition Meeting

Tagged in: RDAC
Zoom
Virtual Event Virtual Event

EMPOWER CHANGE Your Voice Matters in Building a Rare Disease Advisory Council Join the coalition of rare disease patients, experts, and advocates like you to push lawmakers to create a Rare Disease Advisory Council (RDAC) in Vermont. Meet other rare disease community members in your state. Discuss the unique needs and challenges that the rare …

Vermont Rare Disease Advisory Council Coalition Meeting

Tagged in: RDAC
Zoom
Virtual Event Virtual Event

EMPOWER CHANGE Your Voice Matters in Building a Rare Disease Advisory Council Join the coalition of rare disease patients, experts, and advocates like you to push lawmakers to create a Rare Disease Advisory Council (RDAC) in Vermont. Meet other rare disease community members in your state. Discuss the unique needs and challenges that the rare …

National Organization for Rare Disorders