Rare Disease Day February 28, 2025

NORD invites you to share your story. Join the individuals and families who have contributed their personal accounts of living with rare diseases. Alone we are rare. Together we are strong!

Share Your Story & Show Your Stripes

NORD invites you to share your story. Join the individuals and families who have contributed their personal accounts of living with rare diseases. Alone we are rare. Together we are strong!

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Rare Disease Day

How has your life been impacted by rare disease? Please share if you are a patient or a caregiver and which rare disease has affected your life.

Why is Rare Disease Day important to you?

What is one thing you'd like the public to know about rare disease and the challenges patients and caregivers face?

The global theme for Rare Disease Day is "Health Equity." What does equity in health mean to you?

How can others support someone with a rare disease?

How will you be showing your stripes for Rare Disease Day?

Your photo(s), video(s) or audio recording(s)

Videos should be under 2mins and in .mov or .mp4

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Accepted file types: jpg, jpeg, png, mov, mp4, Max. file size: 256 MB.

Rare Disease Day February 28, 2025

Share Your Story & Show Your Stripes

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Rare Disease Day

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