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Rare Disease Day® 2022

ABOUT Rare Disease Day®

It’s a day to raise awareness of the over 7,000 rare diseases that impact over 300 million people globally!

The National Organization for Rare Disorders (NORD) is proud to be the official US partner for Rare Disease Day. We work with our sister organization EURORDIS (Rare Diseases – Europe) and others all around the world to drive an international campaign that shines a light on rare diseases and advocates for health equity for all those living with a rare disease. Visit the international Rare Disease Day site for additional information and resources at rarediseaseday.org.

On this site you can find ways to get involved in events and activities taking place across the United States.

Ways to Get Involved

Stayed tuned for more resources and other ways to get involved!

Show your stripes®

The zebra has become the official symbol of rare diseases in the United States. In honor of our shared mascot we wear striped clothing and accessories to show our support of those lives impacted by a rare disease.

Wearing stripes can start a conversation that helps others learn the facts about the prevalence and challenges of rare diseases. Take a picture of your striped look and share it on social media with the hashtages #ShowYourStripes and #RareDiseaseDay and let’s make some noise for our herd.

LIGHT UP THE WORLD FOR
RARE DISEASE DAY®

Rare Disease Day will continue to be a bit different this year as the ongoing pandemic limits our plans to meet in person.

There are many ways we can come together even if we don’t do so physically. Being part of a global chain of lights in recognition of Rare Disease Day is one example. You can be part of it either by helping to light up monuments and buildings near you in Rare Disease Day colors (blue, green, pink and purple). You can even light your own home in these colors and encourage your friends and neighbors to do the same.

Hundreds of places and people have been a part of growing the global chain of lights. Will you join us too?

Thank you to our 2021 partners!