Show Your Stripes® for
Rare Disease Day with NORD

RARE Is Not Rare

One out of every 10 Americans is living with a rare disease. Worldwide, there are more than 300 million people with rare diseases. Too often, these individuals and families are left isolated and without answers to their medical questions. It doesn't have to be that way.

Rare Disease Day is a global initiative to raise awareness and generate support for everyone who is on a rare medical journey. It takes place on the last day of February, which this year is February 29th, the rarest day of the year.

The National Organization for Rare Disorders (NORD) is the trusted voice of the more than 30 million Americans living with a rare disease. We are proud to be the official U.S. partner for Rare Disease Day. We invite you to read on to learn how to #ShowYourStripes in support of those with a rare disease.

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Show your Stripes®

The zebra is the official mascot for rare disease patients. Historically, medical professionals were told that when they “hear hoofbeats,” they should not expect to see a zebra. In other words, look for the more common answer, a horse. Now, we know that one in ten Americans is actually a zebra! It might not be obvious when you look at us, which is why we show our stripes to raise awareness.

Wearing stripes can start a conversation that helps others learn about the prevalence and challenges of rare diseases. Take a picture of your striped look and share it on social media with the hashtags #ShowYourStripes and #RareDiseaseDay to join this celebration of the many faces of rare disease.

Faces of Rare

Who do you Show Your Stripes for? We want to hear from you! Behind every face is an extraordinary story and sharing your experience, struggles, and triumphs can help impact change.

Share Your Dedication

Light Up for Rare | International Campaign of Lights

Each year, thousands of buildings, landmarks, homes, and communities around the globe light up in honor of Rare Disease Day. Check out NORD's guide with tips on how to Light Up for Rare and join this global chain of lights.

Join the Campaign

Find an Event Near You

Rare Disease Day Coral Reef Elementary

February 29, 2024 8:00 am

6085 Branchwood Drive, Greenacres, FL, USA


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Childrens Healthcare of Atlanta Rare Disease Day Celebration

February 29, 2024 8:30 am

2174 N Druid Hills Rd, Atlanta, GA, USA


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Florida Capitol Rare Disease Day Event

February 29, 2024 9:00 am

Florida State Capitol, South Monroe Street, Tallahassee, Florida, USA


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Rare Disease Day Symposium at Washington University in St. Louis

February 29, 2024 9:00 am

320 S Euclid Ave, St. Louis, MO 63110, USA


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2024 Cleveland, Ohio Rare Disease Day Event

February 29, 2024 9:00 am

2500 Metrohealth Drive, Cleveland, OH, USA


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Rare Disease Day Blood Drive hosted by Grant’s Giants

February 29, 2024 9:00 am

1 Zotec Drive, Carmel, IN, USA


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2024 Rare Disease Day - Bridge Event at Texas Children's Hospital

February 29, 2024 9:00 am

Mark A. Wallace Tower at Texas Children’s Hospital, Fannin Street, Houston, TX, USA


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Rare Disease Day Symposium

February 29, 2024 10:00 am

Segra Park, Columbia, SC, USA


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Rare Disease Day at Boston Children's

February 29, 2024 10:00 am

Boston Children's Hospital, Longwood Avenue, Boston, MA, USA


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Rare Disease Day at Akron Children's Hospital

February 29, 2024 11:00 am

215 W Bowery St, Akron, OH 44308, USA


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UTSW/Children's Health Rare Disease Expo

February 29, 2024 11:00 am

UT Southwestern Medical Center, Harry Hines Boulevard, Dallas, TX, USA


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Rare Disease Day Celebration with NORD

February 29, 2024 11:00 am

Positive Exposure, East 109th Street, New York, NY, USA


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Rare Disease Day Table Event at Emory

February 29, 2024 11:00 am

1365 Clifton Road Northeast, Atlanta, GA, USA


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Cincinnati Children's Hospital Medical Center Supports and Celebrates Rare!

February 29, 2024 11:00 am

3333 Burnet Avenue, Cincinnati, OH, USA


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Colorado Rare Disease Day Celebration

February 29, 2024 1:30 pm

Denver, CO, USA


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Rare Disease Day in Iowa City

February 29, 2024 2:00 pm

Iowa City City Hall, 410 East Washington Street, Iowa City, Iowa, USA


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Yale NORD Center of Excellence and Genetic Department at School of Medicine present: The Life You're Given - A Documentary on Prader-Willi Syndrome

February 29, 2024 2:00 pm

310 Cedar Street, New Haven, CT, USA


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Rare Diseases That Aren't Rare in the Bronx presented by Rose F Kennedy Intellectual Disabilities Research Center | New York Center for Rare Diseases | Montefiore | Albert Einstein College of Medicine

February 29, 2024 2:00 pm

Forchheimer Medical Science Building, Morris Park Avenue, The Bronx, NY, USA


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Fighting H.A.R.D. Foundation Presents: A Fireside Chat

February 29, 2024 3:00 pm

Hilton Garden Inn Hamilton, 800 U.S. 130, Hamilton Township, NJ, USA


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Zebra Hop Release Party

February 29, 2024 4:00 pm

2018 S 1st St #169, Milwaukee, WI 53207, USA


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Rare Disease Day at Recurison HQ & Online

February 29, 2024 4:30 pm

Recursion, 400 West, Salt Lake City, UT, USA


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Connecting in Columbus

February 29, 2024 5:00 pm

2886 Airport Dr, Columbus, OH 43219, USA


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Nationwide Children’s Rare Disease Day Columbus, OH

March 1, 2024 2:00 pm

Nationwide Children's Hospital, Children's Drive, Columbus, Ohio, USA


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NORD at Cape Cod Beer

March 1, 2024 4:00 pm

Cape Cod Beer, Phinneys Lane, Hyannis, MA, USA


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Sip, Taste & Mingle to Celebrate Rare Disease Day!

March 1, 2024 7:00 pm

Thayer Homestead, Oak Street, Medway, MA, USA


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Harvard Rare Disease Hackathon

March 2, 2024 8:00 am

Harvard John A. Paulson School Of Engineering And Applied Sciences, Western Avenue, Boston, MA, USA


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UTSW/Children's Health Rare Disease Day at the Zoo

March 2, 2024 9:00 am

Dallas Zoo, South R.L. Thornton Freeway, Dallas, TX, USA


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Rare Disease Day at Children's Museum Tucson

March 2, 2024 9:00 am

200 South 6th Avenue, Tucson, AZ, USA


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Rare Disease Day Bay Area 2024

March 2, 2024 12:00 pm

The Get Down, Jackson Street, San Jose, CA, USA


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2024 Minnesota Rare Disease Lobby Day

March 5, 2024 10:30 am

State Office Building, Rev Dr Martin Luther King Junior Boulevard., Saint Paul, MN, USA


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2024 Illinois Rare Disease Day - Reception and Awards

March 5, 2024 5:00 pm

President Abraham Lincoln Springfield - a DoubleTree by Hilton Hotel, East Adams Street, Springfield, IL, USA


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The 3rd Annual CHOC and UCI Rare Disease Symposium & Family Conference

March 6, 2024 8:00 am

Susan & Henry Samueli College of Health Sciences, Irvine, CA, USA


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2024 Illinois Rare Disease Day- Breakfast with Legislators

March 6, 2024 8:00 am

Stratton Building, South Spring Street, Springfield, IL, USA


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University of Minnesota presents: Orphan Products for Rare Diseases: Availability and Accessibility - They're Not The Same Thing

March 7, 2024 9:00 am

200 Southeast Oak Street, Minneapolis, MN, USA


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Connecticut Rare Disease Forum

March 7, 2024 1:30 pm

10 Discovery Drive, Farmington, CT, USA


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Special Day for Special Kids

March 9, 2024 10:00 am

7301 East Indian Bend Road, Scottsdale, AZ, USA


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Share or Attend an Event

Rare Disease Day events are happening all month long! Find a local or virtual event to attend or add your own to our calendar.


Rare Disease Day Coral Reef Elementary

February 29, 2024 8:00 am
6085 Branchwood Drive, Greenacres, FL, USA

Learn More >
Childrens Healthcare of Atlanta Rare Disease Day Celebration

February 29, 2024 8:30 am
2174 N Druid Hills Rd, Atlanta, GA, USA

Learn More >
Florida Capitol Rare Disease Day Event

February 29, 2024 9:00 am
Florida State Capitol, South Monroe Street, Tallahassee, Florida, USA

Learn More >

Take Action

NORD was founded more than 40 years ago to advocate for equitable health policies that improve the lives of all rare disease patients and families. Advocacy is what Rare Disease Day is all about, and we encourage you to use your own voice today in honor of this moment.
Join NORD’s Rare Action Network® to connect with rare advocates near you and take part in our action alerts—sending messages to your representatives about key bills and issues.

Join the Rare Action Network

In the News

Feb 20, 2024

A Milwaukee brewery is working to raise awareness and money to help people living with rare diseases. The cause is personal for Jonathan Kowalske, one of the owners of Component Brewing in the city’s Bay View neighborhood. Shortly after Kowalske opened the business with his two cousins in 2018, his son Mac was born. Mac was diagnosed with Malan Syndrome. To put in perspective just how rare the condition is, Mac is one of only about 200 people worldwide who have been diagnosed with Malan Syndrome.

March 3, 2023

Watch CNBC’s Rare Disease Day interview with NORD President and CEO Peter L. Saltonstall and NORD Rare Disease Center of Excellence Director, Dr. Olaf Bodamer of Boston Children’s Hospital, where they shared how rare disease affects 1 in 10 Americans and why everyone, including the pharmaceutical industry and corporate America, should invest more dollars and attention into rare disease research and treatment.

National Organization for Rare Disorders