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Cheryl Herbert
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Recent Press Releases
Featured News
Blogs & Stories
Highlights from Rare Disease Day 2025
From parachuting zebras to “Wicked” stars and breaking news from the NORD® Rare Disease Centers of Excellence, we’re thrilled to share our favorite moments from Rare Disease Day 2025! …
NORD, Paramount Pictures Join Forces to Raise Awareness of Rare Disease
Paramount to match funds donated to NORD in support of new film Novocaine QUINCY, Mass., Feb. 27, 2025 — The National Organization for Rare Disorders (NORD®) is teaming up with Paramount Pictures …
Rare Is Everywhere: Be a Champion to the Rare Disease Community This Feb. 28
Think of 10 people you work with, 10 people you went to school with, or even 10 of your social media followers. Now, consider this: statistically, one in every 10 …