Cheryl Herbert
Vice President of Marketing & Communications
[email protected]
203.304.7264 ext.405
Connor Rice
Senior Manager, Digital Marketing & Projects
[email protected]
475.208.3402 ext.404
Every year on Rare Disease Day, landmarks around the world are illuminated in rare disease colours. Since the first edition in 2008, the Light Up for Rare initiative has become a powerful visual symbol of solidarity with the 300 million people living with a rare disease.
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1 in 10 Americans lives with a rare disease.
Rare Disease Day is a global moment to stand with individuals and families seeking answers, access, and understanding. Today, your generosity helps build a more responsive and equitable rare disease ecosystem.
