One out of every 10 Americans is living with a rare disease. Worldwide, there are more than 300 million people with rare diseases. Too often, these individuals and families are left isolated and without answers to their medical questions. It doesn't have to be that way.
Rare Disease Day is a global initiative to raise awareness and generate support for everyone who is on a rare medical journey. It takes place on the last day of February, which this year is February 28th.
The National Organization for Rare Disorders (NORD) is the trusted voice of the more than 30 million Americans living with a rare disease. We are proud to be the official U.S. partner for Rare Disease Day. We invite you to read on to learn how to #ShowYourStripes in support of those with a rare disease.
The zebra is the official mascot for rare disease patients. Historically, medical professionals were told that when they “hear hoofbeats,” they should not expect to see a zebra. In other words, look for the more common answer, a horse. Now, we know that one in ten Americans is actually a zebra! It might not be obvious when you look at us, which is why we show our stripes to raise awareness.
Wearing stripes can start a conversation that helps others learn about the prevalence and challenges of rare diseases. Take a picture of your striped look and share it on social media with the hashtags #ShowYourStripes and #RareDiseaseDay to join this celebration of the many faces of rare disease.
Who do you Show Your Stripes for? We want to hear from you! Behind every face is an extraordinary story and sharing your experience, struggles, and triumphs can help impact change.
Each year, thousands of buildings, landmarks, homes, and communities around the globe light up in honor of Rare Disease Day. Check out NORD's guide with tips on how to Light Up for Rare and join this global chain of lights.
Join the Campaign
NORD was founded more than 40 years ago to advocate for equitable health policies that improve the lives of all rare disease patients and families. Advocacy is what Rare Disease Day is all about, and we encourage you to use your own voice today in honor of this moment.
Join NORD’s Rare Action Network® to connect with rare advocates near you and take part in our action alerts—sending messages to your representatives about key bills and issues.
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1 in 10 Americans lives with a rare disease.
Rare Disease Day is a global moment to stand with individuals and families seeking answers, access, and understanding. Today, your generosity helps build a more responsive and equitable rare disease ecosystem.
