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Rare Disease Patients
Need Your Immediate Support

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Rare Disease Patients
Need Your Immediate Support

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1 in 10 Americans are living
with a rare disease.

Rare diseases aren’t rare — funding for treatment is. Fewer than 5% of the 10,000 known rare diseases have an approved treatment. Your gift to the National Organization for Rare Disorders (NORD®) can help advance research and the development of new treatments, as well as provide direct assistance to people living with rare diseases and their families.

NORD's Impact

For over 40 years, NORD has driven progress in rare disease patient care, policy and research.

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$0 million in financial assistance for patients and caregivers since 2018

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Nearly0 requests for information, resources, and support responded to by NORD's Patients Services team since 2018

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Nearly0 million travel miles reimbursed for patients seeking treatment, clinical trial participation, or specialist consultations since 2018

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Connecting0 NORD® Rare Disease Centers of Excellence in a nationwide network to reimagine rare disease patient care and research

Every Cent Counts

Your donation will enable us to provide and develop life-saving resources that help families navigate a rare diagnosis, access financial services, and make connections that support them on their journey.

Together, we are reimagining a brighter future for people with rare diseases.

Alone we are rare. Together we are strong.®

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Rare Voices Deserve to be Heard

What does it mean to live with a rare disease?
Read these firsthand accounts to learn more.

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Get ready to Show Your Stripes!
Visit NORD’s Rare Disease Day store. Your purchase supports NORD’s mission and programs.

Shop Now
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Donations can also be mailed to: NORD, Inc. – Donations, Dept. 5930, P.O. Box 4110, Woburn, MA 01888

Want to explore tax-savvy ways you can help us reimagine a future where every person with a rare disease and their families can live their best lives? Consider donating stock, recommending a grant from a Donor-Advised Fund, or giving from your IRA if you’re 70.5 or older. Use our secure online tool to learn more and make your gift in just a few minutes.

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