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September 16, 2019

TOPIC: Uncategorized

NORD Expands Rare Disease Video Library

Posted by Laura Mullen

Seven new videos have been added to the NORD Rare Disease Video Library, a unique educational resource launched earlier this summer.  The library features videos on rare diseases and related topics for patients, caregivers, medical students and professionals. 

The seven new videos are part of a series of short, animated, disease-specific videos for patient and professional… Read More

September 13, 2019

TOPIC: Featured News, Patient Stories

Voices of Rare Cancer: Paul’s Story

Posted by Laura Mullen

Looking back, my symptoms started as early as age 10. I lived in a heightened state of anxiety, and every day stresses seemed to become gradually more unmanageable. I didn’t know what was normal, so I just figured that was what growing up felt like. Over the next couple of years, things progressed. Along with experiencing my… Read More

September 10, 2019

TOPIC: Featured News, Medical

Students for Rare Featured Student: Jaime Tan

Posted by Laura Mullen

NORD’s Educational Initiatives team spoke with Jaime Tan, Central Michigan University medical student and NORD Students for Rare Chapter Leader. In this interview, Jaime talks about how he came to be involved in the rare community. For more information on NORD’s student programs, click here.

  1. Tell us a little bit about yourself! Where are you from?

My name is… Read More

September 6, 2019

TOPIC: Uncategorized

Voices of Rare Cancer: Mackenzie’s Story

Posted by Laura Mullen

Singing has always been a big part of Mackenzie’s life. She auditioned for her school’s choir in seventh grade and continued singing throughout high school. But for a time, as Mackenzie weathered a rare cancer diagnosis, her voice faded, and it looked like she would never sing again.

It started during her junior year with a… Read More