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Advocacy, Rare Disease Advisory Councils (RDAC)

Published November 15, 2024

Rare Disease Advisory Council 2024 Stakeholder Webinar Recording

The National Organization for Rare Disorders (NORD®) hosted this webinar for advocates interested in establishing Rare Disease Advisory Councils in every U.S. state. With the support of NORD, other patient organizations and stakeholders in the rare disease community, RDACs are enabling states to strategically identify and address barriers that prevent individuals living with rare diseases from obtaining proper treatment and care for their condition.

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