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NORD IAMRARE Registry users share their thoughts on how their patient registries are benefiting their communities and how they are using the data.
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Your stripes were shown! See how the rare disease community worked together to make Rare Disease Day 2019 reach the world at large!
Living Rare, Living Stronger will bring the rare community together with physicians, medical students, and allied health professionals for a program of learning, sharing and connecting.
