Board of Directors

The NORD Board of Directors includes representatives of NORD Member Organizations as well as individuals who have demonstrated leadership in serving the rare disease patient community.

Kay Holcombe MS, Chair

Senior Advisor, Milken Institute
Board, Critical Path Institute

Susan A. Berry, MD

University of Minnesota Medical School

Leon Eidelman, CFA, Treasurer

JP Morgan Chase & Co.

Dennis Jackman, MBA, Vice Chair

Independent Board and Organizational Consultant

Tom Kelly

UnitedHealth Group (retired)

Shafali Spurling Jeste, MD

Children’s Hospital Los Angeles
USC Keck School of Medicine

Jim Palma, Secretary

TargetCancer Foundation

Phillip L. Pearl, MD

Boston Children's Hospital

Mike Porath

The Mighty

Pamela Gavin

National Organization for Rare Disorders

Sheldon Schuster, Ph.D.

Keck Graduate Institute of Applied Health Sciences

Mark Skinner, JD

Institute for Policy Advancement

Lorna Weir, JD

Elevate Healthcare