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NORD’s State Resource Center contains information on organizations that offer free or low-cost programs and services for individuals impacted by rare disease.
The State Resource Center was made possible by a group of dedicated NORD volunteers who vetted each organization listed. This list of resources will continue to expand as more organizations are identified. Therefore, if there is an organization you recommend or would like to be added, please email action@rarediseases.org.
Click a category below to explore specific resources.
Programs and services that provide free or low-cost assistive, adaptive, and rehabilitative devices for people with disabilities.
Programs and services that provide support for ancillary medical services, home repair, medical equipment, costs of living, prescriptions, rent, housing, travel, lodging, and utilities.
Programs designed to mitigate emotional and financial aspects of caregiving.
Programs that support children and families through education, counseling, referrals, and community.
Programs and services that support people with disabilities.
Programs that provide free or low-cost education for patients and families.
Programs and services designed to assist in finding adequate insurance coverage or can provide support with navigating insurance claims and denials.
Programs that foster advocacy opportunities or provide free and low-cost legal services.
Programs that provide free or low-cost mental health services and information.
Programs that offer free or low-cost information on nutrition and wellness.
Programs and services for rare disease patients and caregivers that do not fall under any of the other categories listed.
Programs that offer free or low-cost recreational opportunities for individuals living with rare diseases.
From the smallest towns to the largest cities, our mission is to equip every rare disease patient and caregiver with the resources they need to live their healthiest lives, free of charge. Donate today to help NORD continue providing critical resources to those who need it most.
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