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Understanding Rare Disease
Where to start
Rare Disease Facts and Statistics
NORD’s Rare Disease Database
Rare Disease Video Library
What It Means To Be Undiagnosed
Find A Rare Disease Organization
Stay informed
Stories That Inspire
A Podcast For The Rare Disease Community
Rare Disease Day
Resource Library
Publications On Rare Disease
Patient stories
Read More
Living with a Rare Disease
Manage your care
Getting Help & Support
Managing Your Disease
We can help
How NORD Can Help
Speak To Someone at NORD
Rare Disease Center Of Excellence
Patient Assistance Programs
Explore Clinical Trials
Find A Patient Organization
Caregiver Resources
You Are Not Alone.
Read More
Community Support
Where to start
Rare Diseases Defined
Financial & Medical Assistance
Call Center & Information Services
Bringing Together Your Community
Mentoring organizations
NORD Member List
Start a Rare Disease Organization
Membership Program
Becoming Research Ready
Launching Registries & Natural History Studies
Patient-Focused Drug Development
Improving clinical care
Rare Disease Centers of Excellence
Continuing Medical Education (CME)
Partnering with the community
Corporate Council
National Partnerships
Global Parnerships
Diversity, Equity & Inclusion
Community Support
Learn More
Advancing Research
For patients
List of Rare Diseases
Gene Therapy for Rare Disease
Find Clinical Trials & Research Studies
For researchers
Request for Proposals
Research Grant Programs
Data Standards for Rare Diseases
For clinicians
Resources for Patients
Find a Rare Disease Care Center
Continuing Medical Education (CME)
Connect
IAMRARE
®
Program Powered by NORD
Rare Disease Cures Accelerator (RDCA-DAP)
Add Your Expertise
Featured publication
View More
Driving Policy
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Taking action
Join the Rare Action Network®
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Learn about our current policy goals
Get Involved
Raising awareness and funds with NORD
Do-It-Yourself NORD Fundraiser
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Rare Disease Video Library
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Abetalipoproteinemia/Undiagnosed, Noah’s Story
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Activated Phosphoinositide 3-Kinase Delta Syndrome (APDS)
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Adrenoleukodystrophy
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Adrenoleukodystrophy, Taylor’s Story
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Alagille Syndrome
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Alagille Syndrome (Spanish)
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Aplastic Anemia, Lydia’s Story
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Appendix Cancer/PMP, Lauren’s Story
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Aromatic L-Amino Acid Decarboxylase Deficiency
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Autoimmune Polyglandular Syndrome Type 1
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National Organization for Rare Disorders
