RareCare® Patient Assistance Programs

We provide patient assistance programs to help individuals living with rare diseases:

  • Obtain medication
  • Receive financial help with insurance premiums and co-pays
  • Get diagnostic testing assistance
  • Receive travel assistance for clinical trials or consultation with disease specialists
  • Provide caregiver respite
  • Offer support during emergencies
  • Gain knowledge about rare diseases
  • Connect with other patient assistance programs


Help with Financial Assistance

Our RareCare® program helps patients obtain life-saving or life-sustaining medication they could not otherwise afford. The program also provides financial assistance with insurance premiums and co-pays, diagnostic testing assistance, and travel assistance for clinical trials or consultation with disease specialists.

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Help with Caregiver Aid

Caring for a loved one demands significant amounts of time, attention, patience and dedication. Our Respite Program provides financial assistance to enable caregivers a break to attend a conference, event or simply have an afternoon or evening away from caregiving. We grant up to $250 bi-annually for those who qualify.

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Help with Educational Support

The Rare Disease Educational Support Program reimburses registration costs for rare disease-specific educational offerings such as workshops, nutrition classes, and conferences, as well as limited financial assistance for travel and lodging costs. For more information and to apply, please contact rdeducate@rarediseases.org or 860.556.2208.

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NORD’s Impact

For over 40 years, NORD has driven progress in rare disease patient care, policy and research.

$174 million in financial assistance for patients and caregivers since 2018

he NORD Helpline responded to nearly 700,000 requests for support

Nearly 2 million travel miles reimbursed for patients seeking treatment, clinical trial participation or specialist consultations

Connecting $2.5 million in non-medical emergency relief (ERF) provided to patients, including natural disaster and COVID-19 response funds since 2015