Resource Library

Diversity, Equity & Inclusion

Published August 27, 2024

Inequities in the Rare Disease Community: The Voices of Diverse Patients and Caregivers

This report contains the findings from a 2023 survey by NORD and the Rare Disease Diversity Coalition (RDDC) regarding barriers to care faced by underrepresented populations within the rare disease community.

Published July 15, 2024

¿Por qué debería hacerme pruebas genéticas incluso si tengo un diagnóstico? [Infographic]

Published July 15, 2024

Why Should I Get Genetic Testing If I Already Have a Diagnosis? [Infographic]

Advocacy, Get Involved, Legislative Advocacy, Rare Disease Day

Published April 29, 2024

National Volunteer Month Webinar

Diversity, Equity & Inclusion

Published December 8, 2023

Los Latinos Y Las Enfermedades Raras: Fomentando el acceso igualitario en la comunidad de enfermedades raras

Diversity, Equity & Inclusion

Published December 8, 2023

Latinos & Rare Diseases: Building Equitable Access in the Rare Disease Community

Insurance, Legislative Advocacy, Regulatory

Published November 21, 2023

Medicaid Unwinding

Genetic Testing

Published January 27, 2023

Pruebas Genéticas Para Enfermedades Poco Comunes Y No Diagnosticadas

Genetic Testing

Published January 27, 2023

Genetic Testing for Rare and Undiagnosed Diseases

Genetic Testing

Published November 2, 2023

¿Qué son las Pruebas Genéticas?

Genetic Testing

Published November 2, 2023

Genetic Testing for Rare Diseases

Insurance

Published October 11, 2023

Guide to Medicare Open Enrollment for 2024

Get Involved, Rare Cancer, Understanding Rare Disease

Published September 27, 2023

Rare Cancer Day Webinar 2023 – Companion PowerPoint

Get Involved, Rare Cancer, Understanding Rare Disease

Published September 27, 2023

Rare Cancer Day Webinar 2023

Advocacy

Published June 15, 2023

Rare Diseases Report: Cancers

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.ubermenu-target{border:none;}.ubermenu.ubermenu-mobile-accordion-indent .ubermenu-submenu .ubermenu-item-header.ubermenu-has-submenu-stack > .ubermenu-submenu-type-stack{padding-top:0;}.ubermenu.ubermenu-mobile-accordion-indent .ubermenu-submenu-drop .ubermenu-submenu-drop .ubermenu-item > .ubermenu-target,.ubermenu.ubermenu-mobile-accordion-indent .ubermenu-submenu-drop .ubermenu-tab-content-panel .ubermenu-item > .ubermenu-target{padding-left:calc(var(--ubermenu-accordion-indent) * 2);}.ubermenu.ubermenu-mobile-accordion-indent .ubermenu-submenu-drop .ubermenu-submenu-drop .ubermenu-submenu-drop .ubermenu-item > .ubermenu-target,.ubermenu.ubermenu-mobile-accordion-indent .ubermenu-submenu-drop .ubermenu-tab-content-panel .ubermenu-tab-content-panel .ubermenu-item > .ubermenu-target{padding-left:calc(var(--ubermenu-accordion-indent) * 3);}.ubermenu.ubermenu-mobile-accordion-indent .ubermenu-submenu-drop .ubermenu-submenu-drop .ubermenu-submenu-drop .ubermenu-submenu-drop .ubermenu-item > .ubermenu-target,.ubermenu.ubermenu-mobile-accordion-indent .ubermenu-submenu-drop .ubermenu-tab-content-panel .ubermenu-tab-content-panel .ubermenu-tab-content-panel .ubermenu-item > .ubermenu-target{padding-left:calc(var(--ubermenu-accordion-indent) * 4);}.rtl .ubermenu.ubermenu-mobile-accordion-indent .ubermenu-submenu-drop .ubermenu-submenu-drop .ubermenu-item > .ubermenu-target,.rtl .ubermenu.ubermenu-mobile-accordion-indent .ubermenu-submenu-drop .ubermenu-tab-content-panel .ubermenu-item > .ubermenu-target{padding-left:0;padding-right:calc(var(--ubermenu-accordion-indent) * 2);}.rtl .ubermenu.ubermenu-mobile-accordion-indent .ubermenu-submenu-drop .ubermenu-submenu-drop .ubermenu-submenu-drop .ubermenu-item > .ubermenu-target,.rtl .ubermenu.ubermenu-mobile-accordion-indent .ubermenu-submenu-drop .ubermenu-tab-content-panel .ubermenu-tab-content-panel .ubermenu-item > .ubermenu-target{padding-left:0;padding-right:calc(var(--ubermenu-accordion-indent) * 3);}.rtl .ubermenu.ubermenu-mobile-accordion-indent .ubermenu-submenu-drop .ubermenu-submenu-drop .ubermenu-submenu-drop .ubermenu-submenu-drop .ubermenu-item > .ubermenu-target,.rtl .ubermenu.ubermenu-mobile-accordion-indent .ubermenu-submenu-drop .ubermenu-tab-content-panel .ubermenu-tab-content-panel .ubermenu-tab-content-panel .ubermenu-item > .ubermenu-target{padding-left:0;padding-right:calc(var(--ubermenu-accordion-indent) * 4);}.ubermenu-responsive-toggle{display:block;}}@media screen and (max-width: 480px){.ubermenu.ubermenu-responsive .ubermenu-item-level-0{width:100%;}.ubermenu.ubermenu-responsive .ubermenu-column,.ubermenu.ubermenu-responsive .ubermenu-column-auto{min-width:100%;}.ubermenu .ubermenu-autocolumn:not(:first-child),.ubermenu .ubermenu-autocolumn:not(:first-child) .ubermenu-submenu-type-stack{padding-top:0;}.ubermenu .ubermenu-autocolumn:not(:last-child),.ubermenu .ubermenu-autocolumn:not(:last-child) .ubermenu-submenu-type-stack{padding-bottom:0;}.ubermenu .ubermenu-autocolumn > .ubermenu-submenu-type-stack > .ubermenu-item-normal:first-child{margin-top:0;}.ubermenu.ubermenu-responsive.ubermenu-mobile-accordion.ubermenu-interaction-press .ubermenu-item > .ubermenu-submenu-drop,.ubermenu.ubermenu-responsive.ubermenu-mobile-accordion.ubermenu-interaction-press .ubermenu-tab > .ubermenu-tab-content-panel{box-shadow:none;box-sizing:border-box;border-left:none;border-right:none;}.ubermenu.ubermenu-responsive.ubermenu-mobile-accordion.ubermenu-interaction-press .ubermenu-item.ubermenu-active > .ubermenu-submenu-drop,.ubermenu.ubermenu-responsive.ubermenu-mobile-accordion.ubermenu-interaction-press .ubermenu-tab.ubermenu-active > .ubermenu-tab-content-panel{position:static;}}.ubermenu-main .ubermenu-nav .ubermenu-item.ubermenu-item-level-0 > .ubermenu-target{font-weight:600;}.ubermenu-main .ubermenu-item-level-0 > .ubermenu-target{color:#0f131b;padding-left:12px;padding-right:12px;}.ubermenu-main .ubermenu-item-level-0.ubermenu-current-menu-item > .ubermenu-target,.ubermenu-main .ubermenu-item-level-0.ubermenu-current-menu-parent > .ubermenu-target,.ubermenu-main .ubermenu-item-level-0.ubermenu-current-menu-ancestor > .ubermenu-target{color:#fc4c02;}.ubermenu-main.ubermenu-sub-indicators .ubermenu-item-level-0.ubermenu-has-submenu-drop > .ubermenu-target:not(.ubermenu-noindicator){padding-right:27px;}.ubermenu-main.ubermenu-sub-indicators .ubermenu-item-level-0.ubermenu-has-submenu-drop > .ubermenu-target.ubermenu-noindicator{padding-right:12px;}.ubermenu-main .ubermenu-item-normal > .ubermenu-target,.ubermenu-main .ubermenu-submenu .ubermenu-target,.ubermenu-main .ubermenu-submenu .ubermenu-nonlink,.ubermenu-main .ubermenu-submenu .ubermenu-widget,.ubermenu-main .ubermenu-submenu .ubermenu-custom-content-padded,.ubermenu-main .ubermenu-submenu .ubermenu-retractor,.ubermenu-main .ubermenu-submenu .ubermenu-colgroup .ubermenu-column,.ubermenu-main .ubermenu-submenu.ubermenu-submenu-type-stack > .ubermenu-item-normal > .ubermenu-target,.ubermenu-main .ubermenu-submenu.ubermenu-submenu-padded{padding:5px;}.ubermenu-main .ubermenu-grid-row{padding-right:5px;}.ubermenu-main .ubermenu-grid-row .ubermenu-target{padding-right:0;}.ubermenu-main.ubermenu-sub-indicators .ubermenu-submenu :not(.ubermenu-tabs-layout-right) .ubermenu-has-submenu-drop > .ubermenu-target{padding-right:25px;}.ubermenu-main .ubermenu-submenu .ubermenu-item-header > .ubermenu-target,.ubermenu-main .ubermenu-tab > .ubermenu-target{font-size:16px;}.ubermenu-main .ubermenu-submenu .ubermenu-item-header > .ubermenu-target{color:#00558c;}.ubermenu-main .ubermenu-submenu .ubermenu-item-header > .ubermenu-target:hover{color:#00558c;}.ubermenu-main .ubermenu-nav .ubermenu-submenu .ubermenu-item-header > .ubermenu-target{font-weight:600;}.ubermenu-main .ubermenu-submenu .ubermenu-item-header.ubermenu-has-submenu-stack > .ubermenu-target{border:none;}.ubermenu-main .ubermenu-submenu-type-stack{padding-top:0;}.ubermenu-premasthead .ubermenu-nav .ubermenu-item.ubermenu-item-level-0 > .ubermenu-target{font-weight:500;}.ubermenu-premasthead .ubermenu-item-level-0 > .ubermenu-target{color:#0f131b;padding-left:8px;padding-right:8px;}.ubermenu-premasthead .ubermenu-item-level-0.ubermenu-current-menu-item > .ubermenu-target,.ubermenu-premasthead .ubermenu-item-level-0.ubermenu-current-menu-parent > .ubermenu-target,.ubermenu-premasthead .ubermenu-item-level-0.ubermenu-current-menu-ancestor > .ubermenu-target{color:#fc4c02;}.ubermenu-premasthead .ubermenu-item-level-0 > .ubermenu-target,.ubermenu-premasthead .ubermenu-item-level-0 > .ubermenu-custom-content.ubermenu-custom-content-padded{padding-top:6px;padding-bottom:6px;}.ubermenu-premasthead.ubermenu-sub-indicators .ubermenu-item-level-0.ubermenu-has-submenu-drop > .ubermenu-target:not(.ubermenu-noindicator){padding-right:23px;}.ubermenu-premasthead.ubermenu-sub-indicators .ubermenu-item-level-0.ubermenu-has-submenu-drop > .ubermenu-target.ubermenu-noindicator{padding-right:8px;}.ubermenu.ubermenu-premasthead .ubermenu-item-normal > .ubermenu-target:hover,.ubermenu.ubermenu-premasthead .ubermenu-item-normal.ubermenu-active > .ubermenu-target{color:#0099bc;}.ubermenu-premasthead,.ubermenu-premasthead .ubermenu-target,.ubermenu-premasthead .ubermenu-nav .ubermenu-item-level-0 .ubermenu-target{font:13px Lato,sans-serif;}.ubermenu-mobheadrmainmenu .ubermenu-item-level-0 > .ubermenu-target{font-size:20px;text-transform:capitalize;color:#0f131b;border-top:1px solid #979797;}.ubermenu-mobheadrmainmenu .ubermenu-nav .ubermenu-item.ubermenu-item-level-0 > .ubermenu-target{font-weight:400;}.ubermenu.ubermenu-mobheadrmainmenu .ubermenu-item-level-0:hover > .ubermenu-target,.ubermenu-mobheadrmainmenu .ubermenu-item-level-0.ubermenu-active > .ubermenu-target{color:#0099bc;}.ubermenu-mobheadrmainmenu .ubermenu-item-level-0.ubermenu-current-menu-item > .ubermenu-target,.ubermenu-mobheadrmainmenu .ubermenu-item-level-0.ubermenu-current-menu-parent > .ubermenu-target,.ubermenu-mobheadrmainmenu .ubermenu-item-level-0.ubermenu-current-menu-ancestor > .ubermenu-target{color:#0099bc;background:#0099bc;}.ubermenu.ubermenu-mobheadrmainmenu .ubermenu-item-level-0 > .ubermenu-target{background:#fff;}.ubermenu-mobheadrmainmenu .ubermenu-item-normal > .ubermenu-target,.ubermenu-mobheadrmainmenu .ubermenu-submenu .ubermenu-target,.ubermenu-mobheadrmainmenu .ubermenu-submenu .ubermenu-nonlink,.ubermenu-mobheadrmainmenu .ubermenu-submenu .ubermenu-widget,.ubermenu-mobheadrmainmenu .ubermenu-submenu .ubermenu-custom-content-padded,.ubermenu-mobheadrmainmenu .ubermenu-submenu .ubermenu-retractor,.ubermenu-mobheadrmainmenu .ubermenu-submenu .ubermenu-colgroup .ubermenu-column,.ubermenu-mobheadrmainmenu .ubermenu-submenu.ubermenu-submenu-type-stack > .ubermenu-item-normal > .ubermenu-target,.ubermenu-mobheadrmainmenu .ubermenu-submenu.ubermenu-submenu-padded{padding:5px 5px;}.ubermenu-mobheadrmainmenu .ubermenu-grid-row{padding-right:5px 5px;}.ubermenu-mobheadrmainmenu .ubermenu-grid-row .ubermenu-target{padding-right:0;}.ubermenu-mobheadrmainmenu.ubermenu-sub-indicators .ubermenu-submenu :not(.ubermenu-tabs-layout-right) .ubermenu-has-submenu-drop > .ubermenu-target{padding-right:25px;}.ubermenu-mobheadrmainmenu .ubermenu-submenu .ubermenu-item-header > .ubermenu-target,.ubermenu-mobheadrmainmenu .ubermenu-tab > .ubermenu-target{font-size:18px;}.ubermenu-mobheadrmainmenu .ubermenu-submenu .ubermenu-item-header > .ubermenu-target{color:#00558c;}.ubermenu-mobheadrmainmenu .ubermenu-nav .ubermenu-submenu .ubermenu-item-header > .ubermenu-target{font-weight:900;}.ubermenu-mobheadrmainmenu .ubermenu-submenu .ubermenu-item-header.ubermenu-has-submenu-stack > .ubermenu-target{border:none;}.ubermenu-mobheadrmainmenu .ubermenu-submenu-type-stack{padding-top:0;}.ubermenu .ubermenu-item.ubermenu-item-13736 > .ubermenu-target,.ubermenu .ubermenu-item.ubermenu-item-13736 > .ubermenu-content-block,.ubermenu .ubermenu-item.ubermenu-item-13736.ubermenu-custom-content-padded{padding:12px 5px 37px 5px;}.ubermenu .ubermenu-item.ubermenu-item-13737 > .ubermenu-target,.ubermenu .ubermenu-item.ubermenu-item-13737 > .ubermenu-content-block,.ubermenu .ubermenu-item.ubermenu-item-13737.ubermenu-custom-content-padded{padding:12px 5px 52px 5px;}section.nord-layout img{max-width:100%;height:auto;}.page-id-101076 .su-spoiler-content{margin:0 !important;padding:0 !important;}.nord-rare-giving-list{display:flex;flex-wrap:wrap;}.membership-level-wrap{}.page-id-147 .fcl-3-columns-content .col-content-wrapper:nth-of-type(5){flex-basis:33.3%;}.logo-grid{display:flex;flex-wrap:wrap;}.nord-search-filter-wrap{background-color:#f1f1f1;border:1px solid #dedede;border-radius:4px;padding:15px;}.nord-search-filter-wrap.wide form .search-filter-field-group{justify-content:flex-start;}.nord-search-filter-wrap input[type="search"],.nord-search-filter-wrap select{height:38px;padding:2px 7px;width:100%;max-width:100%;border-radius:4px;}.nord-search-filter-wrap input[type="submit"]{display:flex;width:100%;height:38px;font-weight:600;align-items:center;justify-content:center;cursor:pointer;}.search-filter-field-group{margin-bottom:10px;}.nord-search-filter-wrap label{font-weight:600;}.nord-search-filter-wrap.wide{margin-top:2rem;margin-bottom:2rem;}.nord-search-filter-wrap.wide form{display:flex;flex-wrap:wrap;margin-left:-10px;margin-right:-10px;}.nord-search-filter-wrap.wide form .search-filter-field-group{display:flex;width:calc(100% / 3 - 20px);margin:10px;flex-direction:column;justify-content:space-between;}.nord-search-filter-wrap.wide input[type="submit"]{margin-top:10px;margin-right:10px;margin-left:10px;}.nord-ajax-results + .pagination-wrapper{margin-top:1rem;margin-bottom:4rem;}@media screen and (max-width:650px){.nord-search-filter-wrap.wide form .search-filter-field-group{width:100% !important;margin-left:0;margin-right:0;}}