Resource Library

Diversity, Equity & Inclusion

Published December 8, 2023

Los Latinos Y Las Enfermedades Raras: Fomentando el acceso igualitario en la comunidad de enfermedades raras

Diversity, Equity & Inclusion

Published December 8, 2023

Latinos & Rare Diseases: Building Equitable Access in the Rare Disease Community

Insurance, Legislative Advocacy, Regulatory

Published November 21, 2023

Medicaid Unwinding

Genetic Testing

Published January 27, 2023

Pruebas Genéticas Para Enfermedades Poco Comunes Y No Diagnosticadas

Genetic Testing

Published January 27, 2023

Genetic Testing for Rare and Undiagnosed Diseases

Genetic Testing

Published November 2, 2023

¿Qué son las Pruebas Genéticas?

Genetic Testing

Published November 2, 2023

Genetic Testing for Rare Diseases

Insurance

Published October 11, 2023

Guide to Medicare Open Enrollment for 2024

Get Involved, Rare Cancer, Understanding Rare Disease

Published September 27, 2023

Rare Cancer Day Webinar 2023 – Companion PowerPoint

Get Involved, Rare Cancer, Understanding Rare Disease

Published September 27, 2023

Rare Cancer Day Webinar 2023

Advocacy

Published June 15, 2023

Rare Diseases Report: Cancers

Advocacy

Published October 15, 2022

Rare Neurological Disease Special Report

Advocacy, Legislative Advocacy

Published April 1, 2023

Rare Disease Patients and the Inflation Reduction Act

Published March 1, 2023

NORD Overview

Activities, Rare Disease Day

Published February 16, 2023

How to Raise $500 in 10 Day