Current Job Openings at Member Organizations

NORD’s membership is comprised of a diverse array of patient organizations. Currently we have 340 members who together represent hundreds of diseases. NORD supports these member organizations in a multitude of ways, including listing their job openings on our website. Please see below for current job openings from our member organizations.

Executive Director – United MSD Foundation

United MSD Foundation is seeking an Executive Director to lead and be responsible for ensuring the day-to-day management of the organization and financial growth to fulfill the operational and research program goals and objectives. Learn more.


Patient Registry Manager – The Stiff Person Syndrome Research Foundation

The Stiff Person Syndrome Research Foundation is hiring a part-time and remote Patient Registry Manager! The manager will lead the development and implementation of The SPSRF Patient Registry and natural history study. The SPSRF registry will collect data from Stiff Person Syndrome (SPS) patients with the goal of improving care and developing new and better therapies. Learn more.


Development Manager – The Recurrent Respiratory Papillomatosis Foundation

The Recurrent Respiratory Papillomatosis Foundation (RRPF) is hiring a part-time, contract-based Development Manager. The part-time Development Manager is part of our growing leadership team and is responsible for working with the RRPF President, and the RRP Foundation, to steward the Foundation’s development activities. The Development Manager supports the efforts to strengthen the RRP Foundation’s individual and corporate donor programs, including stewardships of major gifts, recurring and planned donations, and other key areas of development. Learn more.


Research Associate – The National Tay-Sachs & Allied Diseases Association

The National Tay-Sachs & Allied Diseases Association (NTSAD) is hiring a part-time Research Associate to support the Research Director. The Research Associate will play an important role in coordinating NTSAD’s Research Initiative. The selected candidate will support scientific work groups and manage an international network of researchers, clinicians, and industry partners. Learn more.


Uplifting Experiences Manager – Uplifting Athletes

Uplifting Athletes is hiring an Uplifting Experiences Manager! The selected candidate will build and cultivate relationships with people impacted by rare diseases and in the athletic community to seamlessly execute Uplifting Experiences. Learn more.