Call us for help and support

The NORD Support Helpline directs families to the resources and information they need, answering more than 140,000 calls and emails annually.

For nearly 40 years, NORD’s programs have assisted the rare disease community to overcome obstacles and access to care. Sometimes what is needed most is information and resources. NORD receives numerous calls and emails requesting assistance navigating a variety of rare disease issues, including:

  • How do I locate a rare disease specialist?
  • Where do I search for a clinical trial?
  • How do I pay for my medical bills and medication?
  • Is there research about my disease?
  • How can I get genetic counseling?
  • Are there resources available to assist me?

NORD has a dedicated Information and Resource Services team.

You may reach NORD Patient Services and Information & Resource Services through our Communication Center 800.999.6673 or by contacting us online.

Our toll-free number

Si deseas hablar con alguien en espanol por favor llame al (844) 259-7178 para asistencia.

Our hours:
Monday-Thursday 8:30 AM – 7:00 PM EST
Friday 8:30 AM – 6:00 PM EST

Important Disclaimer

  • NORD provides this information for the benefit of the rare disease community.
  • NORD is not a medical provider or health care facility and thus can neither diagnose any disease or disorder nor endorse or recommend any specific medical treatments.
  • Patients must rely on the personal and individualized medical advice of their qualified healthcare professionals before seeking any information related to their particular diagnosis, cure, or treatment of a condition or disorder.

Reach us through our Contact Us form

If you prefer, you can reach our support team by filling out the following form by clicking here.