Did you know there are Undiagnosed Rare Disease Organizations?
Cheyanna’s Champions 4 Children (CC4C) provides children with rare or undiagnosed conditions and their families in the Central Texas area with resources to help meet the child’s medical needs not covered by insurance or other financial assistance.
RareConnect’s mission is to set the standard of care for all families on a medical odyssey by making whole genome sequencing available to them through their insurance company as well as to help families emotionally and financially living with an undiagnosed child or a child with a rare condition.
The Wilhelm Foundation advocates for undiagnosed individuals and organizes the World Congress for Undiagnosed Diseases to foster collaboration between the world’s leading specialists.