More Than 90% of Rare Diseases Have No Treatment. Clinical Trials Are Essential for Identifying Therapeutic Options
Participating in a clinical trial can help you access investigational therapies intended to provide new or better ways to treat medical conditions. If you are interested in participating in a clinical trial as a treatment option, speak with your provider who may be able to make a recommendation.
See supporting resources in our library
Our Resource Library offers tips and other information, including:
- What to know about participating in clinical research
- Questions to ask your provider
- Navigating insurance coverage for clinical trials
- Financial assistance for clinical trials
Where can I find information about current rare disease research?
We share information about opportunities to participate incurrent clinical trials and other studies and in our Rare Disease Database. Below is a list of other resources.
- Clinicaltrials.gov is a US government website that lists all studies receiving US government funding, and some supported by private industry
- Centerwatch.com shares information about clinical trials sponsored by private sources
- Clinicaltrialsregister.eu/ provides information about clinical trials conducted in Europe
- ResearchMatch is a nonprofit program funded by the National Institutes of Health (NIH). It helps to connect people interested in research studies with researchers from top medical centers across the US