Find a Rare Disease Patient Organization

Our Organizational Database (ODB) offers patients and families a listing of organizations and resources that can provide them with free information, support, and services. These organizations can be very important in helping navigate living with a rare disease.
ODB Disclaimer: Please note that NORD provides this information for the benefit of the rare disease community. By providing this information, NORD is not endorsing or recommending any organization’s programs or services.

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