Become Part of the Rare Disease Organization List
Representatives of patient organizations who are interested in listing an organization in the NORD’s Organizational Database (ODB) may contact NORD.
Our Organizational Database (ODB) offers patients and families a listing of organizations and resources that can provide them with free information, support, and services. These organizations can be very important in helping navigate living with a rare disease.
ODB Disclaimer: Please note that NORD provides this information for the benefit of the rare disease community. By providing this information, NORD is not endorsing or recommending any organization’s programs or services.